Working together around the world to support research and funding for hydrocephalus programs.

Mile 396:  Recap Day 7 – Today was an easy ride; uneventfully except for the beautiful blue of skies and bay. Meeting Rog and Dee from across the pond was an unexpected encounter in our biking travels. That reminded me of a bloke  who commented on one of our blog posts. Thanks for the kind words and support, Simon.


His geographic location brought to mind a website I ran across recently. I think we sometimes have a tendency to relate to curing disease as it pertains to all of us in the U.S. Hydrocephalus is a global affliction. Like the Hydrocephalus Association here in the states, our friends in the U.K. have a non-profit group called Shine which stands for Spina Bifida, Hydrocephalus, Information, Networking, Equality. The organization is 75,000 members strong and, among many other exciting events on their calendar, they are recruiting volunteers to take part in a 500km bike ride  from London to Paris next summer (not sure how they plan handling the English Channel as I am pretty sure bikes do not float). Unlike Mary and my solo trip, this ride will include a whole slew of folks biking across some  breathtaking European countryside. If you are planning a European holiday and would like a unique, once in a lifetime experience that that will benefit a great cause, have the airline box up that bike! You can learn more about the London to Paris Bike Ride here.

So far, we have raised $480 dollars on Hydrocephalus Association's Spirit of America Ride for Hydrocephalus website. Like the miles ahead, we have a long way to go. If we raise $3,000 dollars, Celsius has committed to match it. That  $6,000 donation will help those that suffer from this life-long illness. If you know of someone living with hydrocephalus or you have lost someone to this disorder, you can also donate in honor or memory of them. I like that. A friend of ours donated in memory of her brother that died when he was less than a year old.

The problem with hydrocephalus is that it can strike at any age and, too often, goes undiagnosed or misdiagnosed as in this recent post that Milton shared on the Hydrocephalus Association’s blog. Our goal is to raise awareness as well as funding to support the work that the association does in research, advocacy, and with patients and their families. If you know someone or have your own story to share, let us know in the comments section. We would like to add your story to our blog.

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